Idiopathic intracranial hypertension: Evolving neurometabolic concepts and implications for clinical pathways

A. Lawson Maclean, K. Moes

Brain and Spine, [under review]

"Just Lose Weight": Weight-based Medical Bias in Intracranial Hypertension

Kelly Moes

The 11th Annual Weight Stigma Conference: From Weight Stigma to Size and Weight Inclusiveness and Liberation, , Frontiers in Psychiatry, vol. 17, 2026, p. 1785195

“My Health Sucked the Future Right Out of Me”: Time and Temporality in Life with Intracranial Hypertension

Kelly Moes

Timescapes of Health, Illness and Care, Dr. Katherine Kenny, Dr. Mia Harrison, Dr. Anthony K.J. Smith, Timescapes of Health, Illness and Care, chapter 11, Springer Nature, Singapore, 2025

Doing, Being and Knowing Intracranial Hypertension: Exploring Facets of IH through Experiential Expertise

Kelly Moes

[Doctoral Thesis], Curtin University, 2025

Rarely Done, Poorly Utilised and Tokenistic: Investigating the Meaningful Engagement of People with Lived Experience of Intracranial Hypertension in Research about Intracranial Hypertension

Kelly Moes, Mike Kent

Including Disability, vol. 6, 2025

Feasibility of a co-designed meal box solution for people living with Huntington’s disease

Joanna Rees, Tina Yan, Kelly Moes, Melanie Clark, Mel Jolly, Lachlan Whittle, Amanda Devine, Simon Laws, Travis Cruickshank

Health Expectations, [under review]

Co-Designing NeuroHub WA: Processes, Principles and Challenges of a Multi-Phase Digital Health Platform Development

K. Moes, M. Clark, C. Kueh, P. Bompard, D. Blacker, T. Cruickshank

[under review]

Co-designing a digital health platform with the neurological community: lived experience insights from the NeuroHub WA discover and define phase

K. Moes, M. Clark, C. Kueh, P. Bompard, D. Blacker, T. Cruickshank

[under review]

Co-Designing the Co-Design: Perspectives of People with Parkinson's Disease on Participatory Research Engagement

K. Moes, J. Rees, S. Laws, D. Blacker, M. Clark, T. Cruickshank, R. Yan

[under review]

Everyday Food Practices among people living with Parkinson's disease

Ran Yan, Jo Rees, Melanie Clark, David Blacker, Renee Hallam, Amanda Divine, Simon M. Laws, Kelly Moes, Travis Cruikshank

[under review]

Exploring Shopping Behaviours in People Living with Acquired Brain Injury

T. Yan, M. Clark, G. Oughton, C. Briscoe, S. Barker, S. Laws, T. Cruickshank, K. Moes

Disability & Rehabilitation, [under review]

Exploring factors that influence meal management and eating behaviours in people living with Huntington’s Disease

Joanna Rees, Tina Yan, Melanie Clark, Melanie Jolly, Alex Fisher, Amanda Devine, Simon Laws, Kelly Moes, Travis Cruickshank

Disability and Rehabilitation, 2026, pp. 1-16

Clinical Insights into the Management of Sleep Disturbances within Cancer Care: A Qualitative Analysis

Sam Adams, Timothy D Clay, Mitchell Turner, Christopher Kueh, Kelly Moes, Travis Cruickshank

Supportive Care in Cancer, vol. 34(257), 2026

Australia’s Mining Camps – What Keeps Fly-In, Fly-Out Workers Awake? A Qualitative Study Assessing the Mining Camp Sleep Environment

Philipp Beranek, Ian C. Dunican, Mitchell Turner, Kelly Moes, Travis Cruickshank

[under review], 2025

Co-design of a weekly meal box for neurological conditions: Findings from consumer and healthcare provider collaborative workshops

J. Rees, A. Devine, K. Moes, M. Clark, R. Sambell, S. Laws, T. Cruickshank

Health Expectations, vol. 28(5), 2025, pp. e70412

Digital Control as Institutional Abuse: Evidence from the Australian Disability Royal Commission on Technology Restrictions for People with Intellectual Disability

Kelly Moes, Kim Cousins, Phoebe Adams, Gwyneth Peaty, Katie Ellis

Including Disability, [in press]

Automated Ableism: Disability Surveillance, Equity, and Bias in Australian Social Services

Maria Ionita, Kelly Moes, Katie Ellis

[in press], M. Kent, L. McRae, Surveillance and social justice, Routledge

SmartSpeaker-Based Conversational Agents and Responses to Crisis and Help-seeking related prompts [working title]

Mike Kent, Kelly Moes

[in development]

Necessarily Oppositional: Digital Chronic Illness Communities as Sites of Resistance and Knowledge Production

Kelly Moes

[in press], K. Ellis, The Research Handbook on Disability and Digital Technologies , Edward Elgar

The False Promise of Telehealth Accessibility for Complex Chronic Illness Communities

Kelly Moes

K. Ellis, The Research Handbook on Disability and Digital Technologies, [in press], Edward Elgar

Disability as Method: Researching Intracranial Hypertension through Crip-Chronic Time

Kelly Moes

Lynette Pretorius, Basil Cahusac de Caux, The Researcher's Compass: Choosing Your Paradigm, Finding Your Voice, [in press]

Starting your PhD: Lessons learned from almost and new graduates

Tamara Reads, Kelly Moes, M.A. Bakhitya

J. Chen, C. Steel, What Every Doctoral Student Should Know but that No One Tells You: The Ins and Outs of Academia, chapter 1, Brill, [in press]

The Affirmation Model of Disability

Achala Dissanayake, Kelly Moes, Jordan A. Fyfe

Katie Ellis, Mike Kent, Jennifer McKellar, Gwyneth Peaty, Disability, Society and Culture: Understanding Models of Disability, chapter 8, Routledge, 2026

Critical Disability Studies

Chloe Rattray, Kelly Moes

Katie Ellis, Mike Kent, Jennifer McKellar, Gwyneth Peaty, Disability, Society and Culture: Understanding Models of Disability, chapter 7, Routledge, 2026

The Social Model of Disability

Hersinta, Kelly Moes

Katie Ellis, Mike Kent, Jennifer McKellar, Gwyneth Peaty, Disability, Society and Culture: Understanding Models of Disability, chapter 4, Routledge, 2026

A Crip Time-Space Odyssey: A bendy journey thinking about, through and with disability

Kelly Moes

Katie Ellis, Mike Kent, Jennifer McKellar, Gwyneth Peaty, Disability, Society and Culture: Understanding Models of Disability, Epilogue, Routledge, 2026

Conclusion

Mike Kent, Kelly Moes

Katie Ellis, Mike Kent, Jennifer McKellar, Gwyneth Peaty, Disability, Society and Culture: Understanding Models of Disability, chapter 9, Routledge, 2026

Can I Get There? Can I Play? Can I Stay? Developing a GPS Methodology for Digital Disability Research

Katie Ellis, Divya Gaarg, Shakil Reja Efti, Kim Cousins, Kelly Moes, Anna Debinski, Cassandra Wright-Dole

Directions & Destinations, School of Media, Creative Arts & Social Inquiry, Curtin University, 2026 Sep

"We all don't fit inside the same box": When Men Have a 'Women's Disease' [poster]

Kelly Moes

Gender Research Network Showcase, Curtin University, 2025

Doing, Being and Knowing Intracranial Hypertension

Kelly Moes

Curtin University, 2025 Feb

Expressing the IH Lived Experience through Images

Kelly Moes

Borderline Bodies, Health and Medical Humanities Symposium, Australian National University, 2024 Jun

AI, Your Virtual Research Assistant in Qualitative Data Analysis

Kelly Moes

Western Australian Institute for Educational Research (WAIER) Spring Research Webinar, 2023 Oct

Thinking Together about Disability

Kelly Moes, Chloe Rattray, Jesse James, Maria Ionita, Jordan Fyfe, Jennifer McKeller

Directions & Destinations, School of Media, Creative Arts & Social Inquiry, Curtin University, 2023 Sep

Disability and Human Rights

Katie Ellis, Maria Ionita, Catia Malaquias, Kelly Moes

Women in Leadership Journey 5, Vietnam Australia Centre, Perth, WA, 2023 Jul

Life with Intracranial Hypertension: Exploring the ‘being’ and ‘doing’ of uncommon chronic illness using first person perspectives and collective knowledge

Kelly Moes

Curtin University, 2023 Jun