Doing, Being and Knowing Intracranial Hypertension
This first large-scale study of Intracranial Hypertension from the first-person perspective centres the experiential expertise of 563 adults with IH to complicate and expand the dominant medicalised perspective of the condition.
Intracranial Hypertension Projects
Building on my doctoral work, this ongoing research explores what it means (socially, culturally, and personally) to live with Intracranial Hypertension, with a focus on the embodied experience, experiential expertise, and community engagement.
Disability, Society and Culture
Contributions to disability theory, including collaborative and sole-authored work across disability models, crip theory, and critical disability studies, developed through the Disability Studies Working Group at Curtin University.
Research exploring disability, digital access, and inclusion across projects at Curtin University's Centre for Culture and Technology, examining digital participation, institutional power, and community knowledge production.
Neurological Disability Health Humanities Projects
Collaborative research examining lived experience across neurological disability and chronic illness, spanning qualitative methods, co-design, and community-based approaches.
A multidisciplinary project focused on first-person perspectives and co-design of targeted interventions to address issues around meals/eating, including impacts from cognitive, movement, and social factors common in people with neurological disability.
An ECU Centre for Precision Health project co-developing a world first digital health platform, that will help people living with a neurological condition navigate their life journey with confidence.