Grounded in Critical Disability Studies, Health Humanities, and the sociology of health and illness, my research is driven by a commitment to centring the voices and expertise of people with lived experience.

My broad research interests draw on disability theory, including the given meaning of disability, as well as principles of disability access, inclusion, and justice. A significant part of my work focuses on neurological disability and chronic illness, exploring how structural, cultural, and social factors shape people's experiences of health.

With a particular interest in how knowledge is produced and by whom, what meaningful community engagement actually looks like in practice, and how research can build social capital, I am drawn to flexible and pragmatic research approaches, using qualitative and critical frameworks, and inclusive research methods that make space for diverse ways of knowing and participating.  

My primary research focus is Intracranial Hypertension (IH), an uncommon neurological and metabolic chronic illness-disability. My aim is to broaden the medicalised meta-narrative around IH, and chronic illness-disability more broadly, to radically transform how they are understood, researched, and managed.

• My PhD research, "Doing, Being and Knowing Intracranial Hypertension: Exploring Facets of IH through Experiential Expertise" centred the collective expertise of 563 people living with IH across 37 countries, making it the largest qualitative study of IH lived experience to date. 
  
  That research now underpins a monograph (in development), and further work on the social and environmental dimensions of the IH experience, and increased research engagement with the IH community of practice. 
  
• My current research extends this work to an Australian context. Led by a co-researcher collective of people living with IH in Australia, "Nothing Without Us" is Australia's first community-led priority setting study for people with IH and aims to identify key priorities around minimising everyday harms. This project is funded by the National Disability Research Partnership.

 As someone who lives with Intracranial Hypertension, I bring my own experiential expertise, including an academic and professional background in disability and mental health community support, to my work.

I currently work as a Research Associate in the Centre for Culture and Technology at Curtin University and as a Research Assistant at Edith Cowan University's Centre for Precision Health. 

Explore my work: 

• Current research projects
• Publications & presentations
• Academic & professional background and CV