Grounded in Critical Disability Studies, Health Humanities, and the sociology of health and illness, my research is driven by a commitment to centering the voices and expertise of people with lived experience. 

I'm particularly interested in how knowledge is produced and by whom, what meaningful community engagement actually looks like in practice, and how research can build genuine social capital rather than extract it. I work across disability inclusion and access, digital disability, co-design, and participatory methodologies, with a particular interest in flexible and inclusive research methods that make space for diverse ways of knowing and participating.  

My primary research focus is Intracranial Hypertension (IH), ann uncommon neurological and metabolic chronic illness-disability. My PhD research, "Doing, Being and Knowing Intracranial Hypertension: Exploring Facets of IH through Experiential Expertise" foregrounds the collective expertise of 563people living with IH across 37 countries, making it the largest qualitative study of IH lived experience to date.  

My aim is to broaden the medicalised meta-narrative around IH, and chronic illness-disability more broadly, to radically transform how they are understood, researched, and managed. As someone who lives with Intracranial Hypertension myself, I bring my own experiential experience, alongside my academic and professional background in disability and mental health community support, to my work.

I currently work as a Research Associate in the Centre for Culture and Technology at Curtin University and at Edith Cowan University's Centre for Precision Health. 

Explore my work: