Kelly Moes

Disability Studies Research | Intracranial Hypertension specialist

“My Health Sucked the Future Right Out of Me”: Time and Temporality in Life with Intracranial Hypertension


Book Chapter


Kelly Moes
Timescapes of Health, Illness and Care, Dr. Katherine Kenny, Dr. Mia Harrison, Dr. Anthony K.J. Smith, Timescapes of Health, Illness and Care, chapter 11, Springer Nature, Singapore, 2025, [preprint, forthcoming]


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APA   Click to copy
Moes, K. (2025). “My Health Sucked the Future Right Out of Me”: Time and Temporality in Life with Intracranial Hypertension. In D. K. Kenny, D. M. Harrison, & D. A. K. J. Smith (Eds.), Timescapes of Health, Illness and Care (pp. [preprint, forthcoming]). Singapore: Springer Nature. https://doi.org/10.1007/978-981-96-7055-0_11


Chicago/Turabian   Click to copy
Moes, Kelly. “‘My Health Sucked the Future Right Out of Me’: Time and Temporality in Life with Intracranial Hypertension.” In Timescapes of Health, Illness and Care, edited by Dr. Katherine Kenny, Dr. Mia Harrison, and Dr. Anthony K.J. Smith, [preprint, forthcoming]. Timescapes of Health, Illness and Care. Singapore: Springer Nature, 2025.


MLA   Click to copy
Moes, Kelly. “‘My Health Sucked the Future Right Out of Me’: Time and Temporality in Life with Intracranial Hypertension.” Timescapes of Health, Illness and Care, edited by Dr. Katherine Kenny et al., Springer Nature, 2025, pp. [preprint, forthcoming], doi:10.1007/978-981-96-7055-0_11.


BibTeX   Click to copy

@inbook{kelly2025a,
  title = {“My Health Sucked the Future Right Out of Me”: Time and Temporality in Life with Intracranial Hypertension},
  year = {2025},
  address = {Singapore},
  chapter = {11},
  pages = {[preprint, forthcoming]},
  publisher = {Springer Nature},
  series = {Timescapes of Health, Illness and Care},
  doi = {10.1007/978-981-96-7055-0_11},
  author = {Moes, Kelly},
  editor = {Kenny, Dr. Katherine and Harrison, Dr. Mia and Smith, Dr. Anthony K.J.},
  booktitle = {Timescapes of Health, Illness and Care},
  howpublished = {}
}

 Abstract 
This chapter explores time in the context of chronic Intracranial Hypertension (IH), an uncommon chronic illness–disability. I argue that developing research methods informed by an understanding of crip-chronic time (Kafer, 2013; Sheppard, 2020) allowed me to facilitate meaningful research that focuses on and promotes embodied knowledge and expertise, opening space for participants’ voices, which has been rare in previous research on IH. 

For people living with IH (pwIH), time is driven by two competing temporalities:  a medicalised, curative framework and ambient uncertainty. Consequently, participants expressed a deep ambivalence in their past, present, and future narratives. The narrowed positive expressions relating to matters of time in IH reflect the ‘complexities of crip lives’ (Sheppard, 2020) and may indicate a considerable lack of quality of life for this cohort. I posit that the future imaginaries of pwIH can be reframed by embracing crip negativity. These findings also offer some insights for other chronic illnesses. 

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