PhD Milestone 3 presentation
Kelly Moes
Curtin University, 2025 Feb
Curtin University, 2025 Feb
Video: Kelly Moes, PhD Milestone 3
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Cite
APA
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Moes, K. (2025, February). Doing, Being and Knowing Intracranial Hypertension. Curtin University.
Chicago/Turabian
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Moes, Kelly. “Doing, Being and Knowing Intracranial Hypertension.” Curtin University, February 2025.
MLA
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Moes, Kelly. Doing, Being and Knowing Intracranial Hypertension. Feb. 2025.
BibTeX Click to copy
@misc{kelly2025a,
title = {Doing, Being and Knowing Intracranial Hypertension},
year = {2025},
month = feb,
address = {Curtin University},
author = {Moes, Kelly},
month_numeric = {2}
}
Abstract:
Through a critical disability studies lens, this thesis presents a radical departure from existing Intracranial Hypertension (IH) scholarship by centring the collective knowledge of the IH community to critically examine what we know about IH and how we know it.
Drawing on perspectives from 563 adults with IH via online surveys and a Facebook-mediated discussion group, the research explores three key facets: the doing, being, and knowing of IH. Key findings demonstrate that the IH experience extends beyond reductive clinical interpretations, highlighting how people navigate complex borderlands, manage uncertainty, and develop embodied expertise.
This first large-scale study of IH from first-person perspectives advances critical disability studies and health humanities, while advocating for the integration of experiential expertise in chronic illness-disability research and management.
Drawing on perspectives from 563 adults with IH via online surveys and a Facebook-mediated discussion group, the research explores three key facets: the doing, being, and knowing of IH. Key findings demonstrate that the IH experience extends beyond reductive clinical interpretations, highlighting how people navigate complex borderlands, manage uncertainty, and develop embodied expertise.
This first large-scale study of IH from first-person perspectives advances critical disability studies and health humanities, while advocating for the integration of experiential expertise in chronic illness-disability research and management.