Overview
This research builds on my doctoral work to develop a sustained body of scholarship that meaningfully engages with the IH community of practice to explore the lived and socio-relational experience of IH.
Monograph
This sole-authored monograph consolidates and extends my doctoral research, developing its theoretical and empirical reach within Health Humanities and the sociology of chronic illness.
The monograph draws on the doctoral dataset of 563 participants across 37 countries to examine the doing, being, and knowing of life with IH, and what facet methodology makes possible as a framework for holding multiple perspectives on complex chronic illness experience together.
Further grounding this work in the lived experience of IH, the monograph will incorproate first-person narrative contributions from individuals with IH from around the world.
Evolving Perspectives in IH
Authors: Dr Alexander Lawson Maclean; Dr Kelly Moes
(currently under review)
This collaborative paper examines developing neurometabolic understandings of IH and their implications for clinical management, bringing together qualitative and clinical perspectives on IH care pathways.